Easton David Seeman, was born on January 30, 2012, one minute after his twin brother, Jaxson. Thanks to today’s modern early detection, we knew Easton was going to be born with a rare syndrome called Heterotaxy, a condition that which affects many organs in the body. Because of Heterotaxy, Easton’s heart is on the right side of his body. Weird and uncommon, but true!
Having just turned 3, Easton has had 3 open heart surgeries, one stomach surgery (with 3 procedures), and 4 catheterizations. Early on, he had an uncertain first few months, including with one cardiac arrest and a seizure during a hospital stay.
These days? He enjoys life like any other 3 year old active little boy, but with a caveat, he constantly proves his doctors and therapists wrong by overacheiving on each goal they set for him. Easton loves to swing like “Swupa-Mannnnn”, climbing rock walls “at his own pace”, playing with his Paw Patrols, Spiderman, and Ninja Turtles. Easton loves to cook his brother “denny” (dinner) in their kitchen and then tell him he can’t eat it! Sweet, Brother-ly love!
Easton is our miracle. We cannot thank him enough for coming into our lives and changing it for the better. Regardless of what he does to push my buttons by telling me “WEAVE ME AWONE!” or “NO!” I love him for being so head strong, because this characteristic is what has gotten him to where he is today! When he puts down his curtain of independence, he shows his love for others by cuddling with them and gently pinching their cheeks.
We are so thankful for the lives Easton has touched and thrilled for the people he has brought into our lives like the Yellow Brick Road, The Holden Flynn Foundation. We are beyond grateful of the knowledge about CHD’s that YBRF has made possible.
You can follow Easton’s story on Facebook at Our Heart Slugger Easton
ybrfoundation.wordpress.com 